Brooks Ginnan, the model and actor who embraced their ectodermal dysplasia: I equated beauty to nearly everything I was not'

"Brooks Ginnan, in addition to being a model, is a 29-year-old non-binary musician and actor. They have a rare physical condition called ectodermal dysplasia (ED), a genetic condition that affects the development of hair, teeth, nails, and skin. This genetic disorder gives Ginnan a distinctive physical appearance that has attracted the attention of designers, photographers, filmmakers, and musicians."

"Ectodermal dysplasias are a group of around 100 genetic disorders that affect the development of the ectoderm, the outermost tissue layer of the embryo, explains the Association of People Affected by Ectodermal Dysplasia (AADE), which points out that when a person has at least two types of ectodermal abnormalities, such as sparse hair and dental abnormalities, they are said to have an ED syndrome."

"The AADE notes that all ED syndromes are genetic, meaning they can be inherited or passed on to offspring, although it is possible for a child to be the first affected in a family."

Brooks Ginnan is a 29-year-old non-binary musician, actor, and model who has gained prominence in recent music videos for artists including Sabrina Carpenter, A$AP Rocky, Orville Peck, Ethel Cain, and Foster the People. Ginnan has ectodermal dysplasia (ED), a rare genetic condition affecting hair, teeth, nails, and skin development. This distinctive physical appearance has made Ginnan highly sought after by designers, photographers, filmmakers, and musicians. Ectodermal dysplasias comprise approximately 100 genetic disorders affecting the ectoderm, the outermost embryonic tissue layer. When a person exhibits at least two types of ectodermal abnormalities, such as sparse hair and dental issues, they are diagnosed with an ED syndrome. All ED syndromes are genetic and can be inherited or occur as new cases within families.

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