""In this case, a few bad apples have taken those data off the platform and they have listed the data for sale," Sir Rory told the BBC Radio 4's Today programme."
""By working swiftly with the UK government and the Chinese government, and we're really grateful for their help, we have been able to get those listings removed before any data were sold.""
"Technology minister Ian Murray stated that the data involved did not include participant's names, addresses, contact details or telephone numbers, but could include gender, age, and lifestyle habits."
"The Biobank has collected intimate details - including whole body scans, DNA sequences and their medical records - from UK volunteers to aid in health research."
De-identified datasets from BBC volunteers were discovered for sale on Alibaba, leading to immediate removal of the listings. The incident has raised concerns about data security, prompting the Biobank to suspend access to its online research platform while implementing additional controls. Sir Rory expressed anger over the situation, emphasizing that only a few individuals misused the data. The data involved did not include personal identifiers but contained sensitive information such as gender, age, and medical records.
Read at www.bbc.com
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