#chronic-illness

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#lupus
Books
fromwww.theguardian.com
2 weeks ago

Cure by Katherine Brabon review moments of grace in meditation on chronic illness

A mother and daughter journey to Italy in search of healing from their chronic illnesses, exploring their complex relationship and personal struggles.
fromFast Company
2 weeks ago

20 years ago, this Fast Company editor was given 18 months to live. Here's what his cancer journey has taught him about work and life

Receiving a diagnosis of multiple myeloma, a rare and incurable blood cancer, created a life-altering reality for Jon Gluck, pushing him toward coping through work.
Health
#health
fromAdvocate.com
4 weeks ago

Chronic but not powerless, why your estate plan deserves a seat at the doctor's office

Most people avoid estate planning because it feels like preparing for death. But if you're living with a chronic condition, it's not about dying - it's about staying in charge.
Health
fromwww.bbc.com
1 month ago

Is RFK Jr's divisive plan to Make America Healthy Again fearmongering - or revolutionary?

A healthy person has a thousand dreams, a sick person only has one. 60% of our population has only one dream that they get better.
Public health
fromtime.com
1 month ago

7 Surprising Symptoms of Lyme Disease

Nearly 500,000 people are diagnosed with Lyme disease each year in the U.S. For about 75% of them, the first sign will be a skin lesion that appears one to four weeks after being bitten by an infected deer tick.
Mental health
#long-covid
Coronavirus
fromwww.theguardian.com
4 months ago

We're losing decades of our life to this illness': long Covid patients on the fear of being forgotten

Long Covid can drastically alter one's life, with Rowan Brown detailing her struggles with various debilitating symptoms over 18 months.
Medicine
fromkffhealthnews.org
6 months ago

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.
Coronavirus
fromwww.theguardian.com
4 months ago

We're losing decades of our life to this illness': long Covid patients on the fear of being forgotten

Long Covid can drastically alter one's life, with Rowan Brown detailing her struggles with various debilitating symptoms over 18 months.
Medicine
fromkffhealthnews.org
6 months ago

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.
Health
fromIrish Independent
1 month ago

Revealed: the age bracket in which Ireland has the highest rate of rheumatoid arthritis in the world

Rheumatoid arthritis affects women three times more than men, highlighting the importance of early detection to manage the condition effectively.
Mental health
fromPsychology Today
1 month ago

Chronic Illness and Health Anxiety

Health anxiety is a normal response to chronic illness.
Intense health anxiety can become problematic and affect quality of life.
Various psychotherapeutic techniques can help treat problematic health anxiety.
Mental health
fromPsychology Today
1 month ago

ME/CFS, Long Covid, and Disconnection From the Self

ME/CFS and long Covid involve complex interactions between symptoms, personality traits, and individual vulnerabilities, but do not suggest a simplistic cause-and-effect relationship.
fromPsychology Today
1 month ago

A Detour in the Care Partner's Journey

Asking for help is a superpower, not a weakness. By recognizing when we need support, we can navigate the complexities of chronic illness with a stronger foundation.
Wellness
#self-acceptance
fromPsychology Today
1 month ago

Pace Yourself: The Key to Managing Chronic Illness

Pacing is crucial for managing energy levels in chronic illness, preventing crashes and maintaining functionality.
Public health
fromwww.npr.org
1 month ago

RFK Jr. says Americans were healthier when his uncle was president. Is he right?

Health concerns voiced by Kennedy may overlook key facts and context regarding historical health data.
Travel
fromConde Nast Traveler
2 months ago

Why South Africa Is the Best Country to Visit If You Have Digestive Issues

Traveling with IBD is possible; focus on enjoying the journey while managing your health needs.
Arts
fromTheartnewspaper
2 months ago

Steamy scenes in urban underworlds were Edward Burra's great subject-now they're coming to Tate Britain

Edward Burra's art captivates but remains relatively obscure despite significant contributions to Modern British art.
#medical-gaslighting
fromPsychology Today
2 months ago
Alternative medicine

The Negative Consequences of Invalidating Patients' Symptoms

Dismissal of symptoms by clinicians can cause real harm, including worsening conditions and loss of trust.
Mental health
fromHarvard Gazette
4 months ago

You went to the doctor and came out feeling worse - Harvard Gazette

Medical gaslighting often stems from doctors' pressures, leading to patient feelings of dismissal regarding hard-to-detect conditions.
Mental health
fromHarvard Gazette
4 months ago

You went to the doctor and came out feeling worse - Harvard Gazette

Medical gaslighting often stems from doctors' pressures, leading to patient feelings of dismissal regarding hard-to-detect conditions.
US news
fromwww.theguardian.com
2 months ago

RFK Jr's Maha' report found to contain citations to nonexistent studies

Kennedy's health report cites nonexistent studies, undermining its credibility.
The report misrepresents existing research, raising concerns about its accuracy.
Criticism of major medical journals highlights Kennedy's skepticism toward established science.
Attempts to restrict government scientists' publication raises ethical questions.
fromPsychology Today
2 months ago

Do Social Media Trends Glamorize Chronic Illness?

Bed rotting trivializes the serious realities of chronic illness and conflates chosen rest with the medically necessary rest experienced by many.
While rest is important, social media trends may obscure the distinction between self-care and the need for professional health interventions.
fromNew York Post
2 months ago

Exclusive | Sports Illustrated Swimsuit model reveals how breast surgery was great for her health

It was never a cosmetic thing for me. My goal was not to get a breast reduction to be smaller or to lose weight.
Remodel
#childrens-health
#crohns-disease
fromIndependent
2 months ago
Cancer

'Crohn's disease forced me to give up my dream job' - patient reveals daily struggle of living with debilitating and incurable illness

London food
fromwww.theguardian.com
4 months ago

A moment that changed me: Crohn's left me in constant pain. An operation restored my appetite for life

Food was a source of joy until Crohn's disease drastically changed that experience.
fromIndependent
2 months ago
Cancer

'Crohn's disease forced me to give up my dream job' - patient reveals daily struggle of living with debilitating and incurable illness

London food
fromwww.theguardian.com
4 months ago

A moment that changed me: Crohn's left me in constant pain. An operation restored my appetite for life

Food was a source of joy until Crohn's disease drastically changed that experience.
Wellness
fromPsychology Today
2 months ago

Values and Chronic Illness

Living according to one's values enhances well-being.
Reflecting on personal values and behaviors is beneficial.
People with chronic illness can improve life quality by defining values.
#mental-health
Mental health
fromPsychology Today
3 months ago

When I Don't Recognize Myself and My Body

Personal experiences with chronic illness can lead to profound disconnection from self, reflecting findings in stress and depersonalization research.
Mental health
fromPsychology Today
4 months ago

From Chasing the Mental Disorder to Meeting the Person

Improving physical health can positively impact mental health.
Health practitioners are increasingly acknowledging the interdependence of mental and physical health.
Finding a sympathetic provider for mental health can be challenging.
Mental health
fromPsychology Today
3 months ago

When I Don't Recognize Myself and My Body

Personal experiences with chronic illness can lead to profound disconnection from self, reflecting findings in stress and depersonalization research.
Mental health
fromPsychology Today
4 months ago

From Chasing the Mental Disorder to Meeting the Person

Improving physical health can positively impact mental health.
Health practitioners are increasingly acknowledging the interdependence of mental and physical health.
Finding a sympathetic provider for mental health can be challenging.
#parenting
fromwww.theguardian.com
2 months ago

Pathemata by Maggie Nelson review a writer's attempt to describe chronic pain

In The Body in Pain, Elaine Scarry articulates that pain’s resistance to language not only makes sharing experiences of suffering difficult but also actively destroys the very language we use to convey them.
Mindfulness
fromwww.bbc.com
3 months ago

'I lost my kidney to a silent assassin'

Stacey said she was now doing well, urged other women to get help: 'Don't ignore it, listen to your body, go seek help.'
Women in technology
fromTruthout
3 months ago

By Refusing to Surrender Our Humanity, We Are Still Able to Fight Back

The new CMS administrator emphasizes personal responsibility for health amid concerns of dehumanizing rhetoric.
OMG science
fromCbsnews
3 months ago

Southern Minnesota woman believed to be the only known person with unnamed genetic disorder

Iris Enriquez exemplifies resilience as the only known person with her unnamed genetic disorder, teaching those around her to value life and love.
Mental health
fromPsychology Today
3 months ago

Cultivating Resilience in Your Chronically Ill Child

Open discussions about chronic illnesses empower children and improve resilience.
Accommodations in school are essential for managing chronic symptoms.
Creative problem-solving is key for parents and teachers.
Mental health support is vital for children with chronic illnesses.
London politics
fromwww.bbc.com
3 months ago

'I've been threatened over my Please Offer Me A Seat badge'

Londoners with disabilities struggle with TfL's 'Please Offer Me A Seat' scheme, facing challenges and threats from other passengers.
fromQNS
4 months ago

Op-ed: Predatory food marketing is fueling health disparities - New York must act - QNS

Predatory food marketing exacerbates health disparities among food-insecure New Yorkers, especially seniors and communities of color.
fromwww.theguardian.com
4 months ago

Migraines made life feel unlivable. It took years to find a doctor who believed me

I was unable to talk about it with anyone except my husband and a constant guilt weighed on me for needing his help.
Mental health
fromwww.theguardian.com
4 months ago

Flannery O'Connor at 100: should we still read her?

Flannery O'Connor skillfully navigated a successful writing career, despite her chronic battle with lupus.
fromwww.theguardian.com
4 months ago

Experience: I'm allergic to nearly everything

MCAS causes extreme allergic reactions and can significantly limit dietary options.
A pivotal event led to a rapid deterioration in food tolerance.
Mast cell stabilizers provided temporary relief, allowing for some normalcy.
A continuing struggle with changing allergies revealed the importance of specialized nutrition.
fromPsychology Today
4 months ago

Dating With a Chronic Illness

Dating can be challenging for those with chronic illnesses or disabilities, emphasizing the importance of communication and self-worth.
Mental health
fromPsychology Today
4 months ago

The Window of Tolerance and Chronic Illness

Understanding the Window of Tolerance helps individuals manage emotions, especially during chronic illness.
Emotional regulation allows people to bring themselves back within their Window of Tolerance.
Mental health
fromPsychology Today
4 months ago

Is There Value in Asking "What If"?

Chronic illness shapes one’s perspective, prompting reflections on lost time, possibilities, and the struggle to find meaning amidst uncertainty.
SF food
fromwww.theguardian.com
4 months ago

RFK Jr directs FDA to revise self-affirm' rule to improve food ingredient safety

Kennedy's directive aims to enhance food ingredient safety by revising self-affirmation rules for manufacturers.
Digital life
fromTruthout
4 months ago

Nearly 3 Million Rural Americans Can't Access Health Care and Reliable Internet

Rural Americans suffer from limited healthcare access and poor internet which adversely affects their health.
Healthcare
fromBuzzFeed
5 months ago

20 American "Norms" That The Rest Of The World Finds Super Weird

Long-term illness can lead to severe financial strain, even for those who make prudent financial decisions.
Healthcare
fromFast Company
5 months ago

I decided to be open at work about my chronic illness. Here's what it taught me

Many employees with invisible conditions remain undisclosed due to fear of stigma.
Supportive workplace environments are essential for employees with invisible conditions.
Miscellaneous
fromNature
5 months ago

Daily briefing: Scientists use AI to design life-like enzymes from scratch

Robert F. Kennedy Jr.'s focus on chronic illness and nutrition could undermine US public health by neglecting the importance of infectious disease research.
Medicine
fromScienceDaily
5 months ago

Study tracks physical and cognitive impairments associated with long COVID

Many individuals with post-COVID-19 syndrome experience persistent symptoms for over two years without significant improvement.
Digital life
fromwww.nytimes.com
5 months ago

Rebecca Yarros' Onyx Storm' Is the Fastest-Selling Adult Novel in 20 Years

Rebecca Yarros overcame personal challenges to achieve success as an author, achieving record-breaking sales with her fantasy series.
US news
fromwww.npr.org
7 months ago

For young adults, caregiving isn't just hard. It can shape you for life

Young love faces challenges when one partner is a caregiver to a chronically ill loved one, impacting their future plans and emotional health.
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