"In April this year, de-identified data from UK Biobank participants were listed for sale on an e-commerce platform in China."
"The UK Biobank has long defended open science, advocating for data sharing to be guided by scientific value and compliance, not geopolitical restrictions."
De-identified data from UK Biobank participants was listed for sale on an e-commerce platform in China in April of this year. The listing involved data that had been de-identified. UK Biobank has defended open science for a long time. Data sharing is presented as something that should be guided by scientific value and compliance requirements. Geopolitical restrictions are framed as not being the basis for how data sharing should be handled. The situation raises concerns about how de-identified datasets can be accessed or monetized outside intended governance frameworks.
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