#patient-advocacy

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#healthcare
fromIndependent
2 weeks ago
Public health

'My boy could 100pc travel for spinal surgery but we have never been offered the choice', says mum of teen left on waiting list once again

Healthcare
fromwww.theguardian.com
5 months ago

My $30,000 health insurance claim was denied. Then I tweeted about it

Insurance denial can occur even in clear medical situations, leading to frustration.
Social media can effectively resolve issues with healthcare insurance disputes.
fromIndependent
2 weeks ago
Public health

'My boy could 100pc travel for spinal surgery but we have never been offered the choice', says mum of teen left on waiting list once again

Healthcare
fromwww.theguardian.com
5 months ago

My $30,000 health insurance claim was denied. Then I tweeted about it

Insurance denial can occur even in clear medical situations, leading to frustration.
Social media can effectively resolve issues with healthcare insurance disputes.
fromwww.npr.org
1 month ago

The best support for a friend with cancer? Presence, listening and space to vent

The number one complaint is when other people who are well-meaning and sharing, 'I know what you're going through; my grandmother had cancer and, oh, by the way, she died.'
US news
fromPsychology Today
1 month ago

Chronic Migraine Impacts Individuals, Families, and Society

Chronic migraine is not just a headache; it severely impacts daily life, causing emotional strain and affecting family dynamics. Early intervention is critical.
Mental health
fromPsychology Today
1 month ago

Why Patients Aren't Always Right

Patients are increasingly seen as experts of their own bodies, impacting healthcare practices and decisions.
UK news
fromIndependent
1 month ago

Vaginal mesh surgery: I had to go abroad and pay thousands for surgery that, up until 2018, was free to women in this country'

There is a growing push to lift the pause on vaginal mesh surgeries for urinary incontinence in Ireland.
#cervical-cancer
UK news
fromIndependent
1 month ago

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

Leona Macken settled her case after HSE admitted failures in reporting her cervical smear tests, which resulted in her stage four cancer.
fromIndependent
1 month ago
UK news

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

UK news
fromIndependent
1 month ago

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

Leona Macken settled her case after HSE admitted failures in reporting her cervical smear tests, which resulted in her stage four cancer.
fromIndependent
1 month ago
UK news

'I let go of anger a long time ago'- Leona Macken on staying positive despite cervical cancer diagnosis after 'failings' in screening

Social justice
fromABC7 Los Angeles
2 months ago

Justice, IL Quantum Prosthetics seeks to help those with limb loss throughout lives; President Vikram Choudary dedicated to craft

Vikram Choudary empowers limb-loss patients through support and an annual fashion show, fostering confidence and community.
Parenting
fromwww.theguardian.com
2 months ago

Parental intuition better at spotting child illness than vital signs, study finds

Parental intuition can better predict critical illness in children than vital signs, highlighting a need for inclusion in care decisions.
#cancer-treatment
fromwww.cbc.ca
2 months ago
Canada news

Fighting cancer is expensive. Ontario hospital parking fees make it worse, advocates say | CBC News

fromwww.cbc.ca
2 months ago
Canada news

Fighting cancer is expensive. Ontario hospital parking fees make it worse, advocates say | CBC News

#health-care
NYC parents
fromFast Company
2 months ago

Here's why Trump's plan is unlikely to fix America's dystopian prescription drug problem

The U.S. prescription drug market faces serious systemic issues, highlighted by the struggles of securing necessary medications due to insurance barriers.
NYC parents
fromFast Company
2 months ago

Here's why Trump's plan is unlikely to fix America's dystopian prescription drug problem

The U.S. prescription drug market faces serious systemic issues, highlighted by the struggles of securing necessary medications due to insurance barriers.
fromwww.bbc.com
2 months ago

'I feel forgotten after 100 weeks on urgent surgery list'

Tracey Meechan's struggle to receive timely treatment for her ovarian cyst highlights the severe impact of NHS waiting times on her life.
Privacy professionals
fromNew York Post
2 months ago

Doctors, former patients warn of LASIK eye surgery dangers: 'Biggest scam ever put on the American public'

The LASIK procedure, while marketed as safe, has led to severe complications and even suicides according to various testimonials.
#health-insurance
fromkffhealthnews.org
3 months ago
Mental health

They won't help me': Sickest patients face insurance denials despite policy fixes

Patients like Sheldon Ekirch face significant challenges with insurance claims, particularly regarding necessary treatments for chronic conditions like small fiber neuropathy.
Healthcare
fromLos Angeles Times
5 months ago

A proposed law could force California health insurers to explain claim denials

Healthcare insurance companies frequently deny necessary treatments, putting families at risk.
Fighting insurance denials can be crucial for patient survival and recovery.
Healthcare
fromtime.com
2 months ago

When Fighting with Your Insurance Company Becomes a Full-Time Job

Navigating health insurance often leads to substantial time loss for patients, as seen in Erin Massey's struggle to secure coverage for her medication.
Cancer
fromNew York Post
2 months ago

Insurance company denies cancer patient potentially life-saving lung transplant

Insurance denial jeopardizes a cancer patient's life-saving lung transplant after initial approval.
Mental health
fromkffhealthnews.org
3 months ago

They won't help me': Sickest patients face insurance denials despite policy fixes

Patients like Sheldon Ekirch face significant challenges with insurance claims, particularly regarding necessary treatments for chronic conditions like small fiber neuropathy.
Healthcare
fromLos Angeles Times
5 months ago

A proposed law could force California health insurers to explain claim denials

Healthcare insurance companies frequently deny necessary treatments, putting families at risk.
Fighting insurance denials can be crucial for patient survival and recovery.
fromwww.bbc.com
2 months ago

New mum says maternity treatment was 'traumatic'

Niki Cotson, a mother in chronic pain post-birth, is advocating for North Tees Hospital to be placed in special measures due to alleged poor maternity care.
UK news
Healthcare
fromFast Company
3 months ago

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.
Renovation
fromwww.hamhigh.co.uk
3 months ago

Fears for hospice's future after Raac concrete found

The Marie Curie Hampstead Hospice's closure, linked to structural issues, has raised concerns about the future of inpatient hospice care and the shift to home care.
fromwww.eastbaytimes.com
3 months ago

Cancer Support Community's Lafayette expansion reflects a different approach to recovery care

Dexter Louie transitioned from a cancer surgeon to a patient, highlighting the importance of community support during his battle with multiple myeloma.
fromwww.bbc.com
3 months ago

'I had signs of ovarian cancer and want others to know them'

Joss Cook's experience with misdiagnosed ovarian cancer highlights the importance of awareness of symptoms and early diagnosis.
Mental health
fromPsychology Today
3 months ago

Challenging Medical Ageism After 50

Ageism significantly impacts healthcare outcomes, leading to neglect of older patients.
Medical evaluations for those over 50 should be collaborative, focusing on informed decisions.
Age-based discrimination in healthcare contributes to cognitive decline and worsening health.
fromwww.independent.co.uk
3 months ago

I've got to move to Scotland because I can't get the cancer drug I need in England'

Moving is a difficult dilemma for Mrs. Angell, who doesn't want to leave her family behind. 'I can't bare it, I've got family here I've got grandchildren, I don't want to leave them,' she said.
UK news
Alternative medicine
fromwww.nytimes.com
4 months ago

Opinion | First Cancer Threatened Her Life. Then Came Medical Freedom.

Dawn Kali, diagnosed with Stage 1 breast cancer, chose alternative medicine over conventional treatments, joining the health freedom movement.
OMG science
fromwww.nytimes.com
4 months ago

Drugs Have Uses We Can't Imagine. He's Using A.I. to Find Them.

AI-driven treatment options can significantly impact the care of patients with rare diseases.
Persistence in seeking unconventional solutions can lead to unexpected and life-saving outcomes.
fromLos Angeles Times
4 months ago

'Show up and share': How one UCLA ICU helps patients and staff live with dying

The Community initiative in UCLA's ICU emphasizes dignified care and support for patients and families during the dying process.
fromFast Company
4 months ago

Can AI fix dental billing? Overjet's new network hopes to make pricing clear

Overjet is launching the Dental Clarity Network to offer real-time cost estimates and insurance coverage for dental procedures, minimizing unexpected bills for patients.
Digital life
#mental-health
Mental health
fromwww.theguardian.com
4 months ago

I had no voice': black mental health patients on surviving a care system they say is racialised

Devon Marston advocates for reform in mental healthcare for minorities, highlighting persistent issues in patient treatment and systemic discrimination.
fromPsychology Today
8 months ago
Medicine

Anticipating Restrictions on Rights With Our Patients

Mental health professionals should be aware of potential policy changes affecting patients' legal rights.
Potential changes include restrictions in healthcare, immigration, family law, education, and employment.
Mental health professionals should check in with patients and provide appropriate support.
Mental health
fromwww.theguardian.com
4 months ago

I had no voice': black mental health patients on surviving a care system they say is racialised

Devon Marston advocates for reform in mental healthcare for minorities, highlighting persistent issues in patient treatment and systemic discrimination.
fromwww.theguardian.com
4 months ago

We're going to talk about death today your death': a doctor on what it's like to end a life rather than extend one

The article highlights the author's first experience with medical assistance in dying, following its legalization in Canada.
Roam Research
fromPsychology Today
4 months ago

From Anecdotes to Data: Researching Sleep in a Rare Disorder

Patient communities are vital for advocating research in rare disorders like Moebius syndrome.
A recent study indicates common sleep disturbances in Moebius syndrome.
More extensive research is essential to understand sleep issues in Moebius syndrome.
fromwww.theguardian.com
4 months ago

Gandalf' accused of selling illegal medicinal cannabis in New Zealand

This isn't just an attack on one man, it's an assault on hundreds of patients who rely on affordable relief, said protest organiser Pearl Schomburg.
UK news
US news
The U.S. organ transplant system is becoming less equitable, with organs often going to less critical patients.
Nearly 20% of organ allocations in 2022 were done out of sequence.
fromwww.newsshopper.co.uk
5 months ago

Sydenham mum with cervical cancer claims doctors said symptoms were 'period'

I attended hospital multiple times between September and December 2024 and was fobbed off with 'it's just your period' by multiple male doctors who didn't even do the basics of an examination.
Cancer
fromwww.bbc.com
5 months ago

'I discovered my fat build-up condition after a Love Islander had it'

Emma Griffiths discovered she had lipoedema after identifying similarities with a Love Island contestant, highlighting the need for better awareness and support.
fromwww.theboltonnews.co.uk
5 months ago

Nursery worker issues cancer warning after thinking she simply had a stomach bug

Chloe Wakelin's misdiagnosis of bowel cancer highlights the importance of recognizing persistent symptoms and ensuring thorough medical evaluations.
#healthcare-costs
#long-covid
Medicine
fromkffhealthnews.org
6 months ago

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.
Coronavirus
fromenglish.elpais.com
7 months ago

Five years after start of pandemic, no one knows how many people are living with long Covid: They see you as a bum who doesn't want to work'

Estimating the number of long Covid sufferers is difficult due to societal disbelief and the illness's lack of detectable biomarkers.
US news
fromwww.npr.org
8 months ago

Long COVID patients push to see federal research refocused on treatments

Long COVID remains a significant health crisis with millions affected and no approved treatments, despite substantial federal funding for research.
Medicine
fromkffhealthnews.org
6 months ago

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.
Coronavirus
fromenglish.elpais.com
7 months ago

Five years after start of pandemic, no one knows how many people are living with long Covid: They see you as a bum who doesn't want to work'

Estimating the number of long Covid sufferers is difficult due to societal disbelief and the illness's lack of detectable biomarkers.
US news
fromwww.npr.org
8 months ago

Long COVID patients push to see federal research refocused on treatments

Long COVID remains a significant health crisis with millions affected and no approved treatments, despite substantial federal funding for research.
fromCornell Chronicle
6 months ago

Physician assistant students launch educational journeys | Cornell Chronicle

Jordyn Green's emergency room experience inspired her journey to become a Physician Assistant.
Miscellaneous
fromtime.com
6 months ago

How to Negotiate Your Medical Bills

Medical bills are often negotiable, and patients can often secure adjustments or reductions by contesting their charges.
fromBuzzFeed
6 months ago

This 28-Year-Old Woman Is Going Viral For Creating A "Medical Binder" So Doctors Listen To Her

Creating a comprehensive medical binder can significantly improve patient advocacy and communication with healthcare providers.
Miscellaneous
fromIndependent
6 months ago

Waiting list 'carousel' - boy (13) finally gets surgery but now faces delay for life-improving therapies

The healthcare system needs reform to prevent delays in necessary surgeries and therapies for patients like Liam.
Digital life
fromwww.nytimes.com
7 months ago

Weight Loss Drugs Changed Their Lives. Then They Lost Coverage.

Blue Cross Blue Shield of Michigan has limited coverage for weight-loss drugs, impacting thousands who rely on them for health and well-being.
fromwww.mercurynews.com
7 months ago

Santa Saves Cannabis

Cannabis legalization has led to improved medical treatments and reduced consumption of alcohol.
Advocates, including medical patients like Santa Claus, are essential in the fight for cannabis rights.
fromIntelligencer
7 months ago

The People Cheering the UnitedHealthcare CEO Shooting

"The fight with the insurance companies was, in many ways, worse than cancer," Anna says. "It took over my entire family's life."
Miscellaneous
fromwww.cbc.ca
8 months ago

Ontario pilot project to address cultural mismatches in long-term care admissions | CBC News

Ontario's pilot project aims to reform long-term care admission rules to better accommodate cultural needs and preferences.
OMG science
fromwww.bbc.com
9 months ago

'I found out I had cancer via an answer machine'

Jesse Tristram's journey illustrates the challenges of navigating cancer diagnosis and treatment, emphasizing the importance of self-advocacy within the healthcare system.
Medicine
fromwww.theguardian.com
9 months ago

Psychedelic Outlaws by Joanna Kempner review a compelling case for the use of magic mushrooms in pain relief

Pain is a complex, subjective experience that poses challenges for both writers and medical professionals.
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