The clock is ticking for my five-year-old son with dementia
A potential US-approved drug could slow Sanfilippo syndrome progression for five-year-old Tate, but treatment access may require costly US-based travel and monitoring.
'My son, 4, has childhood dementia - I'm heartbroken'
A four-year-old boy with Sanfilippo syndrome faces a fatal prognosis; his mother seeks £11,000 to access clinical trials abroad while making lasting memories.
