'Sophia will do Irish dancing or football but afterwards it's like her feet are burning' - parents of 'butterfly skin' sufferer tell of brave daughter's struggle
Briefly

Sophia Dawson, a teenager with a passion for life, faces daily challenges due to epidermolysis bullosa (EB), a painful skin condition. While she engages actively in sports and dancing, the condition often leaves her in excruciating pain. Her father, Mark, who also has EB but experiences it less severely, finds it tough to witness his daughter's daily struggles. Their shared condition adds complexity to their relationship but also highlights Sophia's resilience as she continues to pursue a vibrant lifestyle despite her limitations.
Epidermolysis bullosa (EB) affects the skin's ability to withstand friction and trauma, causing painful blisters and sores that can limit mobility and quality of life.
Sophia Dawson's vibrant lifestyle is overshadowed by the challenges of EB, which not only impacts her physically but also poses emotional hurdles as she navigates daily activities.
Mark Dawson, Sophia's father, shares the burden of EB. His own experience offers some insight, yet he feels helpless watching his daughter endure the painful consequences.
Despite the struggles of living with EB, Sophia remains determined to pursue her interests in sports and dance, showcasing resilience amid her challenges.
Read at Independent
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