#epidermolysis-bullosa

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Parenting
fromIndependent
3 days ago

'Sophia will do Irish dancing or football but afterwards it's like her feet are burning' - parents of 'butterfly skin' sufferer tell of brave daughter's struggle

Living with epidermolysis bullosa (EB) causes significant pain and challenges, as seen in Sophia Dawson's life.
Alternative medicine
fromenglish.elpais.com
1 month ago

High blood pressure medication for adults also helps children with butterfly skin

New gene therapy shows promise in healing epidermolysis bullosa wounds, while repurposed drugs like losartan also provide potential benefits.
LA Dodgers
fromESPN.com
3 months ago

Pads-M's season-series winner to get Vedder Cup

The Padres and Mariners will compete for the Vedder Cup, designed by Eddie Vedder, with proceeds supporting Epidermolysis Bullosa research.
Education
fromIrish Independent
3 months ago

Dublin girl with rare skin disease excited to go to secondary school

Casey Connors, 12, is preparing for secondary school while managing her condition, epidermolysis bullosa, with strong family and community support.
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