#epidermolysis-bullosa
#epidermolysis-bullosa

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'Sophia will do Irish dancing or football but afterwards it's like her feet are burning' - parents of 'butterfly skin' sufferer tell of brave daughter's struggle

Living with epidermolysis bullosa (EB) causes significant pain and challenges, as seen in Sophia Dawson's life.

New gene therapy shows promise in healing epidermolysis bullosa wounds, while repurposed drugs like losartan also provide potential benefits.

The Padres and Mariners will compete for the Vedder Cup, designed by Eddie Vedder, with proceeds supporting Epidermolysis Bullosa research.

Casey Connors, 12, is preparing for secondary school while managing her condition, epidermolysis bullosa, with strong family and community support.

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