#epidermolysis-bullosa

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fromIndependent
1 month ago

'Sophia will do Irish dancing or football but afterwards it's like her feet are burning' - parents of 'butterfly skin' sufferer tell of brave daughter's struggle

Epidermolysis bullosa (EB) affects the skin's ability to withstand friction and trauma, causing painful blisters and sores that can limit mobility and quality of life.
Parenting
Alternative medicine
fromenglish.elpais.com
2 months ago

High blood pressure medication for adults also helps children with butterfly skin

New gene therapy shows promise in healing epidermolysis bullosa wounds, while repurposed drugs like losartan also provide potential benefits.
LA Dodgers
fromESPN.com
4 months ago

Pads-M's season-series winner to get Vedder Cup

The Padres and Mariners will compete for the Vedder Cup, designed by Eddie Vedder, with proceeds supporting Epidermolysis Bullosa research.
fromIrish Independent
5 months ago

Dublin girl with rare skin disease excited to go to secondary school

It's an enormous milestone in any child's life, starting secondary school, let alone for someone living with EB.
Education
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