Britain is getting older and sicker, while a greater share of its population has a disability. While these trends affect the whole of society, they are starkest in the poorest half of working-age families across the country. While we talk a lot about the effects of ageing and ill-health, the implications on demand for unpaid care is largely absent from political debate.
This as-told-to essay is based on a conversation with Dorenne Simonson, 66, who is her granddaughter's kinship care provider in New Jersey. Simonson has parented her since she was two months old. This interview has been edited for length and clarity. I've always been in a situation where I had to spend whatever I made. There's no retirement account when you're single and raise five kids by yourself.
Lauren McCadney had always wanted to live next door to friends or family. In her late 50s, she finally made that happen, though not the way she'd planned. In 2020, Lauren's mother, who had been living with her brother and his family in Frederick, Maryland, died. Lauren, who was going through a difficult divorce and doesn't have children, decided she wanted to be closer to her family and help her brother care for their dad, who was dealing with his own health challenges.
Industry lawsuits quickly blocked most of the regulation, with two federal courts ruling that Medicare exceeded its authority. Following the 2024 elections, Congress barred implementation of the standards before 2034. Last month, the Centers for Medicare and Medicaid Services (CMS) repealed the rule entirely. Hunter called the move devastating with advocates saying it signals a retreat from oversight. It's clear (CMS) has no interest in ensuring adequate staffing, said Sam Brooks of the National Consumer Voice for Quality Long-Term Care.
I was considering retiring after I turned 80, but the cost of geriatric care is high. My sister and ex-wife both require care. My sister is in full-time memory care, and my ex-wife has needed more care over the past two years after a dementia diagnosis, so I decided to keep working. I'm trying to help support them, whether it's paying the care facility directly or paying them to provide some support or outside nurses.
Sometimes it's a fall that brings a broken hip and a loss of mobility. Or memory problems that bubble into danger. Or the death of the partner who was relied upon for care.The need to move to a nursing home, assisted living facility or another type of care setting often comes suddenly, setting off an abrupt, daunting search. It's likely something no one ever wanted, but knowing what to look for and what to ask can make a big difference.