#sickle-cell-disease

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fromLos Angeles Times
1 week ago

Doctors at Cedars-Sinai develop AI-powered mental health 'robot' therapist

"Hi, and welcome. My name is Xaia, and I'm your mental health ally. How can I help?" The virtual reality experience provided comfort and relief for users.
Digital life
#health-awareness
more#health-awareness
fromwww.theguardian.com
1 month ago

UK sickle cell patients get worse care than sufferers of similar disorders'

People living with sickle cell disease experience significantly poorer care compared to those with cystic fibrosis, due to inadequate investment and attention over the years.
Healthcare
fromwww.theguardian.com
1 month ago

Sickle cell patients to have quicker and more accessible treatment in England

Government invests £9m for improved sickle cell disease treatment in England.
#blood-donation
Brooklyn
fromBKReader
6 months ago

Brooklyn Filmmaker Spotlights Struggles And Triumphs of Teen With Sickle Cell Disease

Keenan 'Special' Bristol's film highlights the struggles of those with sickle cell disease and the need for compatible blood donations.
more#blood-donation
#gene-therapy
fromFast Company
3 months ago
Healthcare

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

NYC parents
fromNew York Post
4 months ago

Long Island patient gets breakthrough sickle cell treatment called a 'cure': 'I'm not in pain anymore'

Lyfgenia gene therapy successfully cured sickle cell disease in a New Yorker, showcasing a major medical breakthrough.
SF parents
fromCbsnews
2 months ago

New Jersey teen pain-free thanks to new sickle cell disease treatment

A groundbreaking gene therapy offers a potential cure for sickle cell disease, marking a significant advancement in treatment.
Healthcare
fromFast Company
3 months ago

These breakthrough gene therapies cost millions of dollars. Is a mortgage model the secret to paying for them?

Insurers' refusal to cover innovative gene therapies for conditions like sickle cell disease jeopardizes patient access, necessitating creative financing solutions.
NYC parents
fromNew York Post
4 months ago

Long Island patient gets breakthrough sickle cell treatment called a 'cure': 'I'm not in pain anymore'

Lyfgenia gene therapy successfully cured sickle cell disease in a New Yorker, showcasing a major medical breakthrough.
more#gene-therapy
fromwww.bbc.com
3 months ago

Sickle cell patients not listened to - report

There is a general consensus that the majority of people spoken to are very reluctant to call the ambulance service unless it is the only and last resort and the pain is so bad they have no excuse but to go hospital.
London politics
#crispr
OMG science
fromWIRED
7 months ago

The World's First Crispr Drug Gets a Slow Start

Casgevy is the first approved CRISPR gene-editing treatment available, but complexities hinder widespread patient access.
Medicine
fromWIRED
8 months ago

The First Crispr Treatment Is Making Its Way to Patients

The first CRISPR-based treatment, Casgevy, has been approved for sickle cell disease and beta thalassemia, marking a significant advance in gene-editing therapies.
OMG science
fromWIRED
7 months ago

The World's First Crispr Drug Gets a Slow Start

Casgevy is the first approved CRISPR gene-editing treatment available, but complexities hinder widespread patient access.
Medicine
fromWIRED
8 months ago

The First Crispr Treatment Is Making Its Way to Patients

The first CRISPR-based treatment, Casgevy, has been approved for sickle cell disease and beta thalassemia, marking a significant advance in gene-editing therapies.
more#crispr
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